MY PART

MY PART FAQ

What is the purpose of the Michigan and You – Partnering to Advance Research Together Study (MY PART)?
Why should I participate in MY PART?
Who can take part?
What will I be asked to do if I join the study?
How do I join the study?
How and where do I provide my genetic sample?
Is participating going to cost me anything?
What data about me will be collected?
What happens to my data?
Who will have access to my data?
Are there any risks?
Do I get compensated for my time in the study?
Whom can I contact if I have any questions?

 


What is the purpose of the Michigan and You – Partnering to Advance Research Together Study (MY PART)?

The purpose of this study is to enroll research participants who broadly reflect the diversity of the United States, across health status, age, gender identity, race, ethnicity, and geography, and to create a resource for approved researchers within and outside of the University of Michigan.


Why should I participate in MY PART?
Your participation may help us improve human health! Your participation will advance prediction, prevention, diagnosis, and treatment for all.


Who can take part?
Interested parties must meet ALL of the following criteria to be eligible for the study:

  • Must be 18 years of age or older 
  • Must reside in the United States
  • Must be a Michigan Medicine patient
  • Must be willing to download and use a mobile app or a web browser
  • Must be willing to provide a genetic sample

The study team will screen for additional criteria during the enrollment process.


What will I be asked to do if I join the study?
You will be asked to download a mobile app (recruiters can assist with downloading the app, or participants can elect to download the mobile app before their scheduled study appointments) or use a web browser, answer survey questions about your health and wellness, and provide a blood or saliva sample to the University of Michigan’s Central Biorepository.


How do I join the study?
To join the study, interested volunteers who meet the initial enrollment criteria should contact the study team at precisionhealthstudy@med.umich.edu to schedule an enrollment appointment. Appointments take 15–30 minutes, and are done completely over the phone. 


How and where do I provide my genetic sample?
Genetic samples are provided via blood or saliva (recruiters select the best method for participants). Blood samples are drawn at any Michigan Medicine Lab. Recruiters will instruct participants on when they should provide a genetic sample. Kits to collect saliva samples are mailed to your home. This “spit kit” contains instructions on obtaining your sample and mailing it to the study team. 


Is participating going to cost me anything?
No, study participation is free of charge.


What data about me will be collected?

  1. Your DNA will be extracted from a blood or saliva sample
  2. Personal health information, including demographics, medical records, and health history
  3. Device and application data, such as number of steps taken or distance walked, if you choose to share these data


What happens to my data?
Your contact information and information that directly identifies you will be replaced with a random code before it is used for research purposes. 


Who will have access to my data?
After going through an approval process, researchers inside and outside the University of Michigan may access your data.


Are there any risks?
Study risks are minimal:

  • You could experience possible bruising, bleeding, or infection associated with a blood draw.
  • There is a small chance of confidentiality being lost. Several measures have been taken to reduce the breach of confidentiality. Your sample will be stored with a random code instead of your name, date of birth, or other identifying information.


Do I get compensated for my time in the study?
Yes! Participants will receive a $25 incentive once they have completed surveys and their sample has been processed by the CBR.


Whom can I contact if I have any questions?

The MY PART Study Team can be reached at precisionhealthstudy@med.umich.edu

 

(These FAQs serve as guidelines only. Questions are updated as needed.)